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SYNDROM 3M 1respondent

HI, here is questionnaire for my studies. I am very glad that you are a part of it.

THANK YOU VERY MUCH FOR YOUR PATIENCE!!!

Zabezpečeno
SYNDROM 3M 1respondent
1

How do the surroundings, other people, react to you (your child)?

2

You are specifically adjusted for your height (your child's height). household, furniture, car or other necessary items of daily use?

3

Do you consider medical care sufficient in your country (knowledge of doctors, etc.)? They are your doctors professionally, practically and communicatively able to respond to your needs (the needs of the child)?

4

Do you think that the application of growth hormone has a demonstrably significant effect on body growth in Syndrome 3m?

5

If your child are being treated with growth hormone, in which year has this treatment been started? Or when will it be launched?

6

Covers all financial costs of treatment Your state (health insurance company) or not?

7

Have you considered (for your child) the possibility of undergoing orthopedic surgery k limb lengthening? What is the reason for your decision?

8

If you have already had this orthopedic procedure, how do you (your child) did he help Did it meet your expectations?

9

What is the biggest burden for you at the moment, the obstacles you have to overcome?

10

Can you say how this life experience with 3M syndrome has enriched you?

11

IS THERE SOMETHING YOU WANT TO TELL ME? You can write it here or on messenger :)